Day +390 : Follow-up

My Blood Count Today:
Red Blood Count (HB) = 147 (Normal 130-180)
Platelet = 138(Normal 150-450)
White Blood Count (WBC) = 6.5(Normal 4 - 11)
Absolute Neutrophil Count (ANC) = 4.68 (Normal 1.5 - 8.0)
ALT = 96(Normal 30 - 65 ) - Last follow-up reading
AST = 36(Normal 15-37) - Last follow-up reading
GGT = 267(Normal 15-85) - Last follow-up reading

I am fine today.

I went to do follow-up this morning. The platelet and HB count continue to improve over the last follow-up result. I only get last follow-up (6 weeks ago) liver function test result today. All reading that I monitor - ALT, AST and GGT level - increased with ALT and GGT level exceeded the normal range again. I do not know today’s result yet.

Doctor reduced the steroid (Prednisolon) to 5mg (1 tablet) alternate day. He said, even the dosage is small, but take it off abruptly might cause huge reaction. With less and less steroid, I think I will be having less and less energy and more and more tired :-(

My mouth and eyes continue to be very dry. I need to apply artificial tear regularly. I used to use Biotene mouth wash – a very good mouth moisturizer – to moisturize my mouth, but recently, it caused pain to my teeth. I believe this is caused by sensitive teeth. Could GVHD result in sensitive teeth? Anyway, doctor recommended OralBalance jell to moisturize my mouth and it works great :-) but the price is double the Biotene mouth wash :-(

I went to follow-up at 12:30pm only and reached home at 4:00pm this time. The only consequence of going late is that I could not get the liver function test result on the same day. This doesn’t matter as I believe the doctor will study the result and call me if the treatment course needs to be adjusted.

My next follow-up is 6 weeks later.

See you next post :-)