Day +232

I am fine today.

"Lucky that you come today," doctor told me yesterday. This is because this GVHD comes very fierce :-( In this kind of situation, no one is superman. I thank God that I had made a right decision by calling my friend and listened to his advice to visit the hematologist yesterday. I thought I could 'tahan' (stand) until Monday's appointment. In fact, my eldest sister also keeps pushing me to see hematologist team in UH earlier.

The BMT nurses that I described my symptoms to in Day +230 did her job very well. She made an ad-hoc arrangement with the day care unit in the ward. When I came to the ward, the necessary document was already prepared :-)

I described my situation to some of the BMT nurses, they advised me to take care of my eyes carefully; else the cornea might be 'koyak' (torn).In order to protect my eyes, I apply Vidisic Ophthalmic gel at short interval now. In addition to this, I have to rinse my mouth regularly with Biotene mouthwash. It is an alcohol-free mouthwash that contains enzymes normally found in our saliva. I searched this mouthwash in 3 pharmacies in Puchong on Day +230 but none of them were selling it. Fortunately, the pharmacy in UH had stock.

The new medication that I am taking or applying is as follow (Click to view a large one):


From left to right are steroid Prednisolone, Vidisic Ophthalmic gel and Biotene mouthwash. I have to swallow 24 Prednisolone tablets a day; 12 in the morning and the remaining at night. I joked to my wife that the tablets are Viagra :-) "How do you know?" she asked. "It is blue in colour," I answered :-)

I post photos of my mouth-throat condition and rashes for references only. If you are not ready to see the condition, please avoid clicking the link.

A photo of mouth-throat condition is available here.

A photo of rashes is available here.

See you next post :-)